Honestly, everything about it. Sometimes I feel like I’m talking to rocks or something, when I try to explain that my brain is literally build different, that I just can’t go and focus or being on time or whatever and people just like “you don’t even try” I do try, if I didn’t try like they say I would be dead. 😵
It isn’t just “struggling to focus.” The same way that depression isn’t just “being sad” and anxiety disorder isn’t just “getting nervous.”
When my ADHD is at its worst, I literally become almost illiterate. As in, I read a single sentence, and by the time I finish the last few words, I have completely forgotten the rest of the sentence.
I have to read that sentence 4-6 times over and over before I actually comprehend what the meaning is. The words are being sounded out in my head, but my brain doesn’t store them in short term memory, and certainly not into long term memory.
My brain is too busy processing random other things to dedicate enough attention to the thing I am trying to read. And I’m not taking about Shakespeare or Tolstoy, I’m talking about trying to read a basic email from my manager.
Imagine the feeling you had when you were in school struggling with your toughest subject. Maybe it was math, maybe chemistry, whatever. Remember what it was like when you were focusing as hard as you could to solve a problem on an exam or a homework assignment. Remember that feeling of mental exhaustion? Where it felt like your head actually hurt, you were physically tired from how hard you were focusing? Maybe for the next hour, perhaps even the rest of the day, you couldn’t think hard about anything else?
Well that’s how I feel doing the majority of trivial tasks I have to do all the time. Getting dressed, brushing my teeth, making breakfast, getting my work bag together, remembering to cash a check or pick up a few groceries. Working out, texting back a friend, responding to emails, scheduling a doctor’s appointment, etc.
I start the day mentally exhausted and foggy, and I end the day even more so. And most of the things that nuro-typical folks do without hardly a thought, I have to expend final calculus 3 exam effort to do.
The most frustrating part? Sometimes, seemingly at random, my brain will just kick into gear and I will be able to focus on something for hours without any effort at all. I can’t seem to cause it to happen, I don’t know where it comes from. But on those rare days, I am a god. It actually makes me depressed, because I always think, “if I could be like this just 25% of the time, I would be unstoppable.”
I remember one time I was hosting a party trying to read the rules for Werewolf, but had to delegate the task to someone else because I couldn’t focus on the words. I ended up just slipping out making a joke about having to take my lithium, so I could take my next dose early without being distracted and losing my Strattera pill
Oh yes, I know that experience well. I’ve had to excuse myself to discretely take another pill many times.
The most frustrating part? Sometimes, seemingly at random, my brain will just kick into gear and I will be able to focus on something for hours without any effort at all. I can’t seem to cause it to happen, I don’t know where it comes from.
I reorganized my grandfather’s entire tool shed in 5 hours but the chlotes in my room are still on the ground… this sucks
Yep! And I can’t direct it either, which is also super frustrating. If I’m productive, it’s always in a direction my brain wants to go, not where I actually need to be productive.
It’s doing something for someone else vs doing it for you. For some people, it can serve as a “hack” to engage the hyperfocus.
Aside from stimulants and therapy, learning to live with ADHD is about developing seemingly abnormal coping skills to overcome the barriers it presents. Looks weird from the outside, but it makes total sense to that person because they know it engages something within them that won’t engage under normal circumstances.
It sucks to use and I hate it, but if someone starts doing the thing I’ve been struggling to do, that can engage my ability to do it because I’m doing it so they don’t have to…such as cleaning up one of my messes. Maybe you can use this too?
I also don’t like that I’m not doing the things I should be doing. Yes, I absolutely do see that those things need to be done, no I don’t think someone else is going to do them. Yes, I wish I would just get up and get it done too.
Here’s a sampling:
ADHD can feel like you’re putting in 350% of effort 100% of the time but only achieving 50% of what others achieve, and then being treated like you only put in 10%.
My whole childhood & life before diagnosis, my intelligence and literally everything am good at was used as proof up career & academic & household stuff out of spite.
The paradox of #ADHD - being excellent at complex, high-stimulus tasks and fuck- all at routine, “easy” tasks was a weapon in the hands of parents, teachers, & employers and a constant abusive echo in my brain.
What internalized was that accomplishments that were fun or that came easy to me had no value, only the ones that involve effort “count.” But the things that involved the most effort for me were mundane tasks that came easy to others, so they had no value, either.
ADHD involves SO many micromoments of shame. Stepping Over the pile of laundry. Re- remembering the bill you still haven’t paid. The sink full of dishes and the fridge leftovers lurking in the back. The small but recurring should have" is cumulative and it’s painful.
The last one’s text wasn’t "Select"able on my phone
Gosh, the micromoments of shame really really hits home
It’s the last one for me
‘Just write it down’
‘IT DOESN’T FUCKING WORK!!!’
I can’t count the number of times I start talking about executive dysfunction and someone immediately chirps in with “make a list, chunk it down, say you’re going to do this for 20 minutes and then take a break.” I eventually started asking in response, "Do you suggest to your depression patients simply not being sad? Do you tell your anxiety patients not to worry about stuff? Because that’s what I’m hearing, and it tells me you don’t
I find the practice of making daily to-do lists still helps, not because I’ll be able to necessarily do the thing for 20 minutes on the first try, but after those 20 minutes i might look down at my little note and be able to remember what it was I was supposed to be doing… and then I can have another attempt at maybe doing it in the next 20 minutes.
It isn’t fun.
Yeah, all the stereotypes of the wacky ADHD guy squirrel lol, but it’s not like that on the inside.
We are lost in the goddamn fog, chasing phantoms and mirages that disappear when you look at them too long. We are constantly running to catch up and flailing for context. What looks capricious and funny is mostly just desperation. We aren’t bursting with unlimited energy, it’s as exhausting as it looks. Taking five attempts to actually get a task done because you just forget halfway through. Forgetting where you put the thing, every time. Feeling your working memory slip away like waking from a dream. Fucking up all the time, then having to work twice as hard to fix it, and feeling like shit because you can’t get anything right.
It gets old, man.
I had a nervous breakdown in university, where I had gotten a huge, highly selective merit scholarship under strict performance conditions. I had thrived - relatively speaking - in a traditional classroom, because it was so structured. I murdered tests because it was quiet, structured, and distraction free. Homework was hit or more frequently miss, I struggled socially, and although clearly not malicious my teachers gently noted that my classroom behavior could be a challenge “to the other students’ learning”, but I was brilliant enough at tests and classwork and highly motivated by my toxic dysfunctional house to get out that I had successfully gotten my golden ticket.
University, where you had to set and enforce your own structure? I couldn’t cope. I got a lot of flack on “you never learned to study”, “you just don’t know how to do really hard things, now that it isn’t easy for you”. I missed deadlines for administrative work, I forgot assignments, I struggled to remember the instructions to follow them.
I remember a day just before I hit that wall - I was in the study cubicles in the library, trying to work on some critical midterms for a challenging course. I only had the cubicle rental for a set amount of time and needed to meet my long-suffering roommate for a ride home at a given time - they were also very busy and I was not helping their life by being late to everything constantly. I checked the time to see how much longer I had and went back to writing, but realized I hadn’t actually internalized the time so I checked again. Within 10 seconds I couldn’t remember how long I had again, so I checked again - tried really hard to remember! Said it out loud, was shushed by my cube neighbor. Looked up at them - forgot time. Checked again, pen to paper to write it down - I had forgotten already.
Frustrated as hell, I got up to get a drink at the water fountain, hoping the walk and the water would “clear my head”. At this point I had forgotten I even needed to check the time. I sat back down at my cubicle, picked up my pen to start writing for this midterm, began brainstorming – I was at the water fountain again, although I didn’t remember choosing to go or any of the not-short walk there. Puzzled but not surprised, I thought “I must have been thirstier than I knew”, and made sure to get a BIG drink this time. Walked back to the cubicle. Pick up pen. “Focus”. Deep breath. Consider the themes of –
I am back at the water fountain. Hand to heaven I did not choose to be here. I do not NEED to be here. I am not thirsty. I return back to my cube without getting a drink because “I am not rewarding myself for wasting time”.
I walk back to the wrong cubicle because I have forgotten the cubicle number I rented.
I end up back at the water fountain trying to remember my cubicle by retracing my steps - it’s not like I haven’t walked that path half a dozen times today already, how did I just now forget??
I get another drink. I finally make it back to my cubicle. I start working on the midterm again, but in the-reading the prompt sheet realize I have not been working on the prompt I actually signed up for this whole time - not that I have written even a paragraph yet. Frustrated to tears after years of this constantly and feeling like a failure, my phone buzzes angrily - somehow during all of this NOTHING, 4 hours came and went, and I am now late to meet my roommate, who is threatening to leave without me.
When I finally finish the paper, it is submitted by my professor for a “best paper of the semester” award and places second.
2 months later, seeing the campus psychiatrist after my mental breakdown due to “overwhelming anxiety”, he listens to me for 45 minutes. He promises we will talk about the anxiety, which is very real and distressing, but also maybe I should consider this other thing. He takes a paper from his filing cabinet, folds over the top so I can’t see what the title is, and presents me with a questionnaire asking me to rate myself from one to five on every moral failing that has ever disappointed and frustrated me and everyone who claims to love me. I am sobbing within 5 questions – there is a name for this?? This is treatable?? I’m not just a lazy failure?? No, I have no idea what the title of this questionnaire would be.
“Adult ADHD Assessment”.
Most people, it turns out, DON’T have a childhood nickname of “space cadet” or “nutty professor”, can finish a sentence in a linear fashion, can sit relatively still, don’t interrupt their psychiatrist 5 times in 20 minutes, and can remember what they have and have not discussed in a 45 minute time window. It also turns out that being a high achiever in a strict scholarship program as a member of the honors college in a challenging major at a prestigious university with “the WORST case of ADHD I have ever seen” is not super easy, although I can’t imagine why.
Within days I am on my first day of Adderall, although I am told not to expect much at this dose. I almost forget to take it, but my roommate forcefully reminds me as we drive, and I never remembered to take the prescription out of my bag so I still have it. I walk the 15 minutes from the lot to the library.
As I pass the student union building next to the library, I realize something absolutely insane - I know where I am right now, and I remember getting here. Not that I remember every leaf or face I passed, but it isn’t like the water fountain where I only know that I went somewhere because I am now there. Despite having the same routine every day of walking to the library to rent my cubicle first thing, I often “overshoot” and accidentally walk past it and head to the buildings for my major without getting my rental and storing my bag, usually only remembering where I am and what I’m doing once I go to open the door of my first class and see that it isn’t my class in there yet - I’m supposed to be studying in the library for a few hours more.
But not on Adderall - on 10 whole mg of Adderall I successfully went right where I was supposed to be on purpose at the right time and I remembered doing it, and it was so unfamiliar an experience that I cried on a bench in the quad about it.
Mine isn’t this bad, but I can relate to the first-day-on-Adderall thing. It was wild when I walked into my messy bathroom an hour after that first dose and my brain just went: “It is possible, even reasonable for you to clean this bathroom, in a finite amount of time, without every moment filling you with dread. This task will not consume your whole
lifeday.” My brain had simply never done that before. I could just choose to do something and–perhaps more importantly–to stop doing something. I remember I washyperfixatingworking on a hobby project at 11 PM on a work night and my brain went: “If you stop working now, brush your teeth and go to bed, this fun project will still be here for you to work on tomorrow. You don’t have to keep at it until 6 AM and then go to work without sleeping.” That seemed like such a foreign concept at the time. It was weird to hear that from my own brain, not in a “you’re being bad” way, but in a “it’s going to be okay” way. There was a lot of happy crying those first few weeks.Just wish I’d been diagnosed in college instead of in my mid-30s. I might have graduated.
People like to throw around the word ‘lazy’ but it’s more like I can’t turn it on OR off unless I’m medicated. Once I’m in the zone I will work until I grow a beard, then wither away, then my crumbling skeleton grows a beard. It would be a powerful thing if I could aim it.
Please don’t “trap” me and force my attention on to you.
I literally cannot subvert my attention from what I am focused on. Please just say my name and wait a moment for me to context switch myself.
Forcing the attention takes away from what I want to focus on and what you want me to focus on (usually you).
I’d second this as something people don’t get about ADHD.
So I work in IT support. If I’m absorbed in something complicated and you ask me to stop immediately to help you with your “more urgent” issue, please don’t take it personally if I seem annoyed while my brain short circuits trying to deal with the sudden gear change.
Is this an ADHD thing or a normal human behavior?
Many adhd symptoms are “normal human” behavior/traits, but in people with adhd they are more exaggerated than in neurotypical peeps. So while something like this might be slightly annoying for a typical person, for someone with adhd it is likely worse.
It’s worse for ADHD. It’s an outsize irritation. Also, once the focus is broken it can be really hard to pick back up the original task.
Also why we endlessly do the hip wiggle to avoid going to the loo until it hurts.
“Just do [X]” does not compute, whether X is “yoga”, “sports”, “[specific diet]”, “the laundry”, or simply “it”. It is never simply “just”. The inability to “just” start doing a thing (especially without any immediate reward) is one of the central symptoms of ADHD and if you say “just do [X]”, you’re essentially saying “just don’t have ADHD”.
ADHD also doesn’t mean you are/were bad in school. Not by a long shot.
Lord Almighty, I am not lazy.
While yes, it looks like I’m sitting there on my phone, my functional part is screaming at me. Get up. Go do the thing. Do your work. You wanna get fired? Get up. Get the fuck up… As I click on another meme or post or video.
I understand that this may come across as flippant and possibly condescending, so apologies in advance, but I mean it as a genuine question.
What would it take to break the… inertia?
I imagine you’d move if your chair caught fire, so there must be some line. How low can the bar be set?
To be born with another brain
Neuroscience answer: Dopamine is responsible for (among other things) motivation and the feeling of reward when you do something. People with ADHD have chronically low dopamine levels because they have more dopamine transporters than most people do in their brains, so their brains burn through it quickly.
In practice, people who are unmedicated tend to do whatever they can to try and get a little more dopamine to get them through the day. It’s why smoking, risk taking, illicit drug use, gambling addiction, etc are also correlated with ADHD: all those things give you a dopamine boost.
So when someone is sitting there scrolling through memes on the phone, they’re hunting for the dopamine. The dopamine is almost never at The Task. It’s incredibly frustrating to understand all that and still not really be able to do anything about it until it escalates into an emergency, at which point you don’t really need dopamine to deal with it anymore, now that you have adrenaline. But that’s obviously an unsustainable way to do things on a regular basis.
Meth. Anything less will only result in eventual and catastrophic failure. Source: I have ADHD and have tried everything else, several times over.
You mean Methylphenidate? Because people when understand a different thing when you say meth…
